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Senior Director of Patient Advocacy

Company: Eli Lilly and Company
Location: Alexandria
Posted on: November 26, 2022

Job Description:

At Lilly, we unite caring with discovery to make life better for people around the world. We are a global healthcare leader headquartered in Indianapolis, Indiana. Our 35,000 employees around the world work to discover and bring life-changing medicines to those who need them, improve the understanding and management of disease, and give back to our communities through philanthropy and volunteerism. We give our best effort to our work, and we put people first. We're looking for people who are determined to make life better for people around the world.The Senior Director, Patient Advocacy will be an integral member of the Prevail patient advocacy team providing tactical and strategic contributions to the organization. This person will report to the Chief Medical Officer and work cross-functionally with multiple Prevail teams as well as external patient advocacy organizations to support patient community engagement, gene therapy education, genetic testing awareness, and ensuring the patient perspective is incorporated and championed in Prevail's research and development programs. -We are looking for a team member who is enthusiastic, self-motivated, hands-on, has excellent communication skills, and can span multiple disease areas. - In this role, you will have exposure to senior management, colleagues at our parent company, Eli Lilly, and will be influential in helping to develop a patient-directed culture.Key Responsibilities

  • Serve as primary relationship manager for key disease-specific and rare disease umbrella advocacy groups and act as a Prevail ambassador with external patient groups, patient advocates, families/patients, and other stakeholders.
  • Coordinate existing relationships with the advocacy community and seek new partnering opportunities in relevant disease areas ensuring strong collaborations with patient advocacy groups. -
  • Develop consistent patient community communication channels to ensure direct, credible and consistent sharing of information with patient advocacy groups. Leverage insights learned from the patient community to bring the patient perspective to Prevail's project teams and decision-making and serve as a champion for patient and caregiver needs within Prevail.
    • Develop and execute strategies to address disease-specific challenges, increase disease awareness, decrease time to diagnosis and genotyping, and increase access to clinical trial and therapy information, customized for unique challenges and opportunities in the gene therapy space.
    • Support the execution of patient related activities such as advisory board and patient speakers and conduct market research as needed to gain the patient and family point of view into specific disease areas.
    • Manage key internal employee education and engagement events such as Rare Disease Day and other awareness days to help bring the patient community perspective to the broader Prevail team.
    • Proactively drive internal communication with regular updates and forums to share Prevail's work in the patient communities and advocacy initiatives.
    • Develop and maintain community engagement strategies and tactics that may include educational programs, disease awareness initiatives, patient speaker engagement, social media engagement, clinical trial awareness, and patient-focused websites.
    • Manage functional charitable contributions and sponsorships and strategically fund programs and activities that support patient engagement and disease state education aligned with Prevail's therapeutic areas of interest.
    • Lead functional operations including activities related to external events and conference participation including materials and attendance coordination and internal operational matters such as review and approval of communications.Requirements:
      • Minimum 5 years of experience working in industry (pharma/biotech) and/or a patient-focused non-profit organization; prior patient advocacy experience required
      • Undergraduate degree required; Master's Degree in related field (genetic counseling, public health) preferred but not requiredAdditional Skills/Preferences:
        • Strong track record of developing and supporting successful patient advocacy strategies and communications with excellent written and oral communication skills
        • Ability to be a company ambassador with high emotional intelligence and empathy required
        • Experience in gene therapy and/or rare diseases preferred
        • Strong attention to detail and the ability to manage multiple tasks in parallel
        • Ability to work individually, within a multi-disciplinary team, as well as with external vendors
        • Understanding of relevant regulatory and compliance requirements and guidelines
        • Strong business acumen with an ability to understand key clinical, scientific, and business information and relay it to stakeholders in an authentic way
        • Proven ability to build consensus and influence without authority within an organization and with external stakeholdersAdditional Information:
          • Position Location: New York City, Prevail Therapeutics a wholly owned subsidiary of Eli Lilly.
          • Qualified candidates must be legally authorized to be employed in the United States. Lilly does not anticipate providing sponsorship for employment visa status (e.g., H-1B or TN status) for this employment position
          • Lilly currently anticipates that the base salary for this position could range from between $138,750 to $203,500 and will depend, in part, on the successful candidate's qualifications for the role, including education and experience. Full-time equivalent employees also will be eligible for a company bonus (depending, in part, on company and individual performance). In addition, Lilly offers a comprehensive benefit program to eligible employees, including eligibility to participate in a company-sponsored 401(k); pension; vacation benefits; eligibility for medical, dental, vision and prescription drug benefits; flexible benefits (e.g., healthcare and/or dependent day care flexible spending accounts); life insurance and death benefits; certain time off and leave of absence benefits; and well-being benefits (e.g., employee assistance program, fitness benefits, and employee clubs and activities).Of course, the compensation described above is subject to change and could be higher or lower than the range described above. Further, Lilly reserves the right to amend, modify, or terminate its compensation and benefit programs in its sole discretion and Lilly's compensation practices and guidelines will apply regarding the details of any promotion or transfer of Lilly employees.Eli Lilly and Company, Lilly USA, LLC and our wholly owned subsidiaries (collectively "Lilly") are committed to help individuals with disabilities to participate in the workforce and ensure equal opportunity to compete for jobs. If you require an accommodation to submit a resume for positions at Lilly, please email Lilly Human Resources ( ) for further assistance. Please note This email address is intended for use only to request an accommodation as part of the application process. Any other correspondence will not receive a response.Lilly is an EEO/Affirmative Action Employer and does not discriminate on the basis of age, race, color, religion, gender, sexual orientation, gender identity, gender expression, national origin, protected veteran status, disability or any other legally protected status.Our employee resource groups (ERGs) offer strong support networks for their members and help our company develop talented individuals for future leadership roles. Our current groups include: Africa, Middle East, Central Asia Network, African American Network, Chinese Culture Network, Early Career Professionals, Japanese International Leadership Network (JILN), Lilly India Network, Organization of Latinos at Lilly, PRIDE (LGBTQ + Allies), Veterans Leadership Network, Women's Network, Working and Living with Disabilities. Learn more about all of our groups.As a condition of employment with Eli Lilly and Company and its subsidiaries in the United States and Puerto Rico, you must be fully COVID-19 vaccinated and provide proof of vaccination satisfactory to the company (subject to applicable law).#WeAreLilly

Keywords: Eli Lilly and Company, Alexandria , Senior Director of Patient Advocacy, Executive , Alexandria, Virginia

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